- Joined
- May 28, 2015
- Messages
- 734
~so today is my first day of being truly awesome. \o/ but before I get into that let me tell you the reason for this post. I will be kind of "away" for awhile, but I will have my computer and I will try to be on to fill server. I will try to be on TS more but there is a lot of noise going on so I will be muted most of the time.
The rest is the long story, you don't have to read it, but please read the bold part, thanks
I suffer from a disease that basically degrades my muscles over time. BUT I am one of the few females to make it to the end stages of this disease type (Limb girdle, muscular dystrophy, type 2b). There is no cure for this type of MD BUT there is a treatment going on to make muscles stronger...cell replacement. It's awfully painful and the worst thing is the potassium drip XD This is my 7th time doing this. It's a pain in the butt but I get to meet the young girls who are getting the treatment, and see how well they're doing. Each girl is paired with a younger girl which is for counseling through this process. I am paired with Joy, a 10 girl who is why I will never stop helping. My timeline was 5- I showed signs of walking on my toes, 7-I tripped a lot and I couldn't react fast enough to catch myself, 9- I could not get up from the floor, and I spent half my time in a wheelchair, 12-I could not bare weight and was in a wheelchair all the time, 16-My heart starting to get weaker, 19- The only things I can move on my own is my hands and my feet. Joy is turning 11 in a few months and she is walking very well, living a fairly normal life and does not need leg braces or daily medication. She should be going through stage 3 atm, but she's still one stage 1.
Okay now to the awesome part XD
In 2012 I started writing a book for fun called "Total Take Down". It was supposed to a joke on all the anime/manga I've ever known. All the characters are based off of people I know (mostly on the internet) Since I will have to stay in one spot for a couple months I decided to continue writing it adding...YOU GUYS. A boy who has LGMD type 1a has fallen in love with this story and started sketching out scenes. So I hope I get to show you guys what your characters look like
If you'd like to be in this story or would like to add anything please write a little something or use the format I have below, most of the characters are combined with well known manga characters <-so if you have any please write down your top 3
This is 10% of the format I use for making characters XD This is a comic, so you don't have to be exactly you, if you were a cartoon what kind would you be, or it can just be you XD
Name:
Age:
Height:
Weight/body type:
Hair color:
Eye color:
Skin color:
Theme song:
Favorite saying:
Allergies:
Talents/Powers:
Tattoos/Marks on body:
Nick names/Titles:
Secrets/Regrets:
Weaknesses:
Fears:
Pet Peeves:
Weapon:
Favorite insult:
How you greet/say bye to others:
Job:
Goals:
Friends:
Enemies:
^friends and enemies can be people you know on here, even me
Thanks guys and I hope to get pictures up soon
The rest is the long story, you don't have to read it, but please read the bold part, thanks
I suffer from a disease that basically degrades my muscles over time. BUT I am one of the few females to make it to the end stages of this disease type (Limb girdle, muscular dystrophy, type 2b). There is no cure for this type of MD BUT there is a treatment going on to make muscles stronger...cell replacement. It's awfully painful and the worst thing is the potassium drip XD This is my 7th time doing this. It's a pain in the butt but I get to meet the young girls who are getting the treatment, and see how well they're doing. Each girl is paired with a younger girl which is for counseling through this process. I am paired with Joy, a 10 girl who is why I will never stop helping. My timeline was 5- I showed signs of walking on my toes, 7-I tripped a lot and I couldn't react fast enough to catch myself, 9- I could not get up from the floor, and I spent half my time in a wheelchair, 12-I could not bare weight and was in a wheelchair all the time, 16-My heart starting to get weaker, 19- The only things I can move on my own is my hands and my feet. Joy is turning 11 in a few months and she is walking very well, living a fairly normal life and does not need leg braces or daily medication. She should be going through stage 3 atm, but she's still one stage 1.
Okay now to the awesome part XD
In 2012 I started writing a book for fun called "Total Take Down". It was supposed to a joke on all the anime/manga I've ever known. All the characters are based off of people I know (mostly on the internet) Since I will have to stay in one spot for a couple months I decided to continue writing it adding...YOU GUYS. A boy who has LGMD type 1a has fallen in love with this story and started sketching out scenes. So I hope I get to show you guys what your characters look like
If you'd like to be in this story or would like to add anything please write a little something or use the format I have below, most of the characters are combined with well known manga characters <-so if you have any please write down your top 3
This is 10% of the format I use for making characters XD This is a comic, so you don't have to be exactly you, if you were a cartoon what kind would you be, or it can just be you XD
Name:
Age:
Height:
Weight/body type:
Hair color:
Eye color:
Skin color:
Theme song:
Favorite saying:
Allergies:
Talents/Powers:
Tattoos/Marks on body:
Nick names/Titles:
Secrets/Regrets:
Weaknesses:
Fears:
Pet Peeves:
Weapon:
Favorite insult:
How you greet/say bye to others:
Job:
Goals:
Friends:
Enemies:
^friends and enemies can be people you know on here, even me
Thanks guys and I hope to get pictures up soon
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